MovementDisordersREVIEWCLINICAL PRACTICETransitional Care for Young People withMovement Disorders:Consensus-BasedRecommendations from the MDS TaskForce on PediatricsTamara Pringsheim,MD,Amit Batla,MD,FRCP Ali Shalash,MD,PhD,3 Jitendra Kumar Sahu,DM,Carlos Cosentino,MD,5Darius Ebrahimi-Fakhari MD,PhD,5 Jennifer Friedman,MD,?Jean-Piemre Lin,MBChB PhD,Jonathan Mink,MD,PhD,Alexander Munchau,MD,Daniela Munoz,MD,"Nardo Nardocci,MD,Belen Perez-Duefas,MD,PhD,3 Zomer Sardar,MBBS,FCPS,14Chahnez Triki,MD,5 Hilla Ben-Pazi,MD,5 Laura Silveira-Moriyama,MD,PhD,Monica Troncoso-Schifferli MD,"Kyoko Hoshino,MD,Russell C.Dale,MD,PhD,Victor S.C.Fung,PhD,FRACP,Manju A.Kurian,MBBChir,PhD,andEmmanuel Roze,MD,PhD22Abstract:Background:The International Parkinson and Movement Disorders Society (MDS)set up a workinggroup on pediatric movement disorders(MDS Task Force on Pediatrics)to generate recommendations to guidethe transition process from pediatrics to adult health care systems in patients with childhood-onset movementdisorders.Methods:To develop recommendations for transitional care for childhood onset movement disorders,we useda formal consensus development process,using a multi-round,web-based Delphi survey.The Delphi surveywas based on the results of the scoping review of the literature and the results of a survey of MDS members ontransition practices.Through iterative discussions,we generated the recommendations included in the survey.The MDS Task Force on Pediatrics were the voting members for the Delphi survey.The task force memberscomprise 23 child and adult neurologists with expertise in the field of movement disorders and from all regionsof the world.Results:Fifteen recommendations divided across four different areas were made pertaining to:(1)teamcomposition and structure,(2)planning and readiness,(3)goals of care,and(4)administration and research.Allrecommendations achieved consensus with a median score of 7 or greater.Deparnent of Clinical Neurosces,Psydiatry,Pediatrio and Commmity Heald Scenc,University of Calgary,Calgary,AB,Canada;Department of Clinicaland Movonent Ne UCLQen Square Institte of Neurlogy,London,UK:Depament f Neurology,Faclty ofm Ain Shans UerisyCaiEgypt;Pediatrie Neurology Unit,Postgraduate Institute of Medical Education and Research,Chaandigarit,India;5Department of Neurodegenerative Diseases,InstitutoNadonal de Ciencias Neurologicas and,Uniersidad Nadonal Mayor de San Maros,Lina,Pen;Depart f Nairology,Baston Cldr'sHospital,Harvan Medical Schtool,Boston,MA,USA;Departments of Natrasciences and Pediatrics,UC San Diego,San Diego,CA,USA;"Ctilden'sNeuroscimes,Complex Motor Disorders Service (CMDS),Evina London Cildra's Hospital,Guy's and St Thmas'NHS Foundation Tnust GSTT),andWome and Children's Heaith Institute Facuity of Lie Sciences&Medicine,Kings Heaith Parmers,King's College London,London,UK;"Deparonent of Natrology,University of Rocester,Rochester,NY,USA:mstitte of Systems Motor Sciene,University of Liibeck,Libed,Gemmany;Deparonent of P
